Back to work



Both the place I’m currently working at as the one that actually pays the bills were very understanding about the situation with Sandra and I could’ve taken more time off than I did, but I wasn’t looking forward to staring at the walls in my flat for another week. Last week I survived mainly on adrenaline and with the support of my family and friends (the sympathy I’ve gotten in comments, mails and posts like Michel’s was very welcome) and Saturday I collapsed. Nothing drastic, just that I woke up at my usual time, just in time to listen to Saturday Live and I didn’t know what to do with myself. Nothing I could read interested me, internet did not appeal and even the last refuge of the desperate, daytime television was no comfort. It was only a momentary glitch, but it confirmed what I already suspected. No matter how others grief, I needed routine, distraction and a chance to not think about it all…

Because there’s a heck of a lot of free time now to fill up. In the past two years life revolved around hospital visits and/or taking care of Sandra when she was home, with everything else pushed to the margins. That overwhelming focus is no longer needed now and all my usual distractions aren’t quite enough to fill that void. Work helps, to a certain extent. But I still need something more, something bigger than me to believe in — nothing scary and religious, but some sort of cause to work for or hobby to get deeply involved in, something that does more than just entertain me for a couple of hours. I need to get more political again.

First order of business: Resurrect Prog Gold.

And now?

It’s the day after the funeral, the family has all go home and Simon has gone back to England and now I’m all alone again and have to get used to a life without Sandra. Going back to work next week and get back some normalcry. What with having to deal with everything this week it’s been a bit too hectic to actually realise how much emptier my life has become, so I’m not looking forward to that. It will be so strange not having to plan my weekends and evenings around visiting Sandra in hospital anymore.

Worse, I’ve had eight years to become used to living with somebody and I don’t know how to live alone anymore. The last two years don’t count, because obviously she was going to come back home at some point. The last time I was living on my own was still in a student flat with a shared kitchen. It’s not going to be easy…

So farewell then, Sandra

So we had the funeral at nine this morning and an hour later we were outside again as I watched the car with the remains of my wife drive off to the crematory. As per Sandra’s wishes there wasn’t a real service, just Simon, me and my family to say goodbye with some of her favourite songs, poem and some heartfelt speeches from my parents and brothers. In a month’s time I can pick up her ashes, then sometime early next year I’ll fly over to England and her sons and I. scatter them somewhere on a favourite spot of hers. And that’ll be the end of our relationship, except in my memories.

We met each other in 2000 in the most geeky of circumstances: online, but not just online but on IRC and not on any IRC server, but on the alt.fan.pratchett servers in Lspace. I’d been a regular there for a couple of months or so when she showed up and at first I thought she was just a cynical smartarse — and she thought the same about me. But we kept talking and became friends, then more than friends, talking for hours on the phone too (still paying off those bills now). The first time we met face to face was after Christmas that year, when she came to visit me in Amsterdam — I’ll never forget the first time I saw her, when she stepped out off the Euroliner bus, all lovely and smiley and tiny. Those first couple of days were awkward, but we persevered as we learned to be around each other.

For the next couple of years we had a long distance relationship, visiting each other every few months or so. In 2001 I tried to get a job in England and almost ended up working for Camelot, the lottery people. I’d quit my Dutch job, moved over to Sandra for a month or longer and got roped into helping the local Socialist Alliance candidate romp home to an overwhelming election victory of a few hundred votes. Sandra was his electorial agent but had gotten a bout of food poisoning at an afp barbeque meet, so I said I’d do some leafletting and such for her. It was my first acquintance with the sharp end of socialist politics — and the first time I saw her during a proper health scare.

She told me from the start, when things had gotten serious, about her health problems, of the cancer she had survived and the consequences she still suffered from, that being with her would inevitably mean having to deal with her being poorly a lot and possibly not live very long. No, of course I didn’t realise or understand how honest she was at the time, or what the consequences would be for her and our relationship. At the time I thought it a risk worth taking and I still do.

She moved over to the Netherlands in 2003, just as I became unemployed again. We had a few lean years, then as we became more financially well off her health started to trouble her again. At the same time, her new doctors at the VU medical centre were positive on helping her deal with some of the side effects of the various operations she had been through when dealing with her cancer, though it did mean more surgery as well. Not that everything revolved around her health all the time, but sadly her health troubles did become more frequent over time. In the end her kidneys failed completely, she had to go on dialysis and luckily it turned out I could be her donor. We had the operations just before Christmas 2009, I recovered quickly enough to be out of hospital on Christmas day, while Sandra was home a couple of weeks later. Things had turned for the better, but then she fell prey to the first of many side effects. It took her two years of a cycle of being in hospital for a couple of weeks to months to be treated for new nasty side effects of yet another cocktail of drugs, a couple of weeks at home finally on the mend, then having to come back to hospital for yet another infection that popped up. She fought long and hard but in the end she won many battles but lost the war.

Even so, even in the last few months, things weren’t all bad. Though it may look like her ill health ruled her life, that the past few years especially were completely dominated by it, this was never the case. As most people with chronical illnesses or disabilities probably discover, these are things you have to work through or around, something that’s always present in the background, but that doesn’t mean you are defined by your illness or disability. Sandra always wanted to live as normal a life as possible, keep doing the things she wanted to do for as long as she could. Even in the last few days she became angry if I was too impatient with her to allow her to get her cigarettes herself when she wanted to go outside to smoke.

As for myself, I don’t regret a single thing about our relationship, save of course for the way it had to end, much too soon. The years I spent with her were not wasted. She made me a better man than I actually am because that’s what she thought I was.

Thank you

If there’s been one comfort during this awful week it has been the support and sympathy I’ve gotten not just from my family, but from everybody who has taken the time to write in. I also want to thank Tom Spurgeon and File 770 for putting up condoleance notices, something I hadn’t expected at all. It means a lot to us, this kindness both from old friends and those who have only known us through the internet. It is especially nice to see so many old afpers comment, since Sandra and I had dropped out in the last couple of years, as first financial and then her health problems kept us away. Glad to see she hasn’t been forgotten. Earlier this year when it did still seem that she might be cured enough to start leading a normal life again, we did talk about going over for the con next year, which I may still do.

Terry Pratchett fandom was how we met; his documentary on the right to die helped crystallise her conviction to take control of her own death, to die on her own terms rather than wait for another calamity to kill her. Once she decided that her situation wasn’t going to improve, she chose the best death she could get and got it.

Tomorrow is the funeral, when she will be cremated so that sometime next year her sons and I can scatter her ashes at one of her favourite spots in Devon. Neither she nor I believe in life after death: for her everything was over last Monday; for me life without her is just beginning. It’s going to be hard, but for her sake as well as mine I have to try.

Sandra’s music

So much of the music I like today was formed through Sandra’s tutoring. She was a child of the seventies as I was of the eighties, but much more involved in music and listening to music than I ever was. So she told me of the time she saw Blondie perform in Plymouth at a time when nobody knew them yet, of going to see Depeche Mode in Atlanta when she lived there because you went to every English band coming over because not so many English bands hit Georgia back then, of dancing in the Wigan Casino and other near-mythical discotheques. She collected music and rare records at a time when that didn’t mean having a large hard drive and a fast internet connection, when you still had to hunt for that import single in scruffy record stores in dodgy neighbourhoods, building up a massive collection of vinyl, then losing it all when one of her uncles cleared out her father’s house after his death…

In day to day life she prefered to have the radio on (BBC radio 4, natch) rather than have music on in the background, having to a certain extent grown tired of it, or at least having it on all the time. She wasn’t really interested anymore in being nerdy obsessive about her music, though was still open to new stuff. She liked hip-hop, funk, pop music like the Style Council, baroque composers like Handel or Telemann but not twentieth century composers like Stravinsky, jazz of course, everything that sounded mellifluous, so Dutch language songs were right out…

She introduced me to everything from Ann Peebles, Bill Withers, Marvin Gaye, the Brothers Johnson and George Benson (which would always recall summer holidays in France with her parents for her), Chaka Khan/Rufus, Outkast, De La Soul, Digible Planets, Dizzee Rascal, The Streets, Billie Holliday, Ella, Half Man Half Biscuit, and so on unsoweiter.